Home » Chronic Pain/Fibromyalgia » Happy 100th Post, And A Quick Update On Me!

Happy 100th Post, And A Quick Update On Me!


Image by MatissDzelve from Pixabay

Hello friends! I hope this holiday season finds you all well, happy, and loved. This is a big day because this post is my 100th on this blog! It only took me four years. I have a few things that have been going on with Hubby and me that I’d like to share.

First, I’ll cover Hubby. He’s been dealing with the MS with just a few hiccups in the road. He has had what he describes as ‘jumpy vision,’ which was diagnosed over the summer as nystagmus. The severity of it depends on the day and how tired or fatigued he is. He wears an eye patch when it’s very bad, which luckily isn’t often these days. Prism lenses in his reading glasses are helpful for him. 

I’m a more complex case these days. I have been having some neurological symptoms myself that, if experienced by themselves would be no worry. But double vision, muscle spasms, facial tics, and a brief stint of choking on almost any liquid I drank… all these things together spelled trouble. So on Thursday, I saw a neurologist for the first time in my life. The good news is that he doesn’t believe the symptoms are related to MS. Hallelujah! 

The not-so-great part of the visit comes in two acts, so to speak. First, he believes he has found the cause for the double vision. It is called fourth nerve palsy, which basically means muscles in my left eye are weak or paralyzed. He was able to detect a tracking issue, meaning my left and right eyes don’t move together as they should. This causes the double vision. The diagnosis is somewhat good, and treatment is possible if only I can afford the fix. Prism lenses in my own glasses can potentially help. The problem is the cost. My best guess and estimates go anywhere from $900 to $1500 for a pair of prism lenses. Yes, I had to pick my bottom jaw off the floor, too. This reaction is totally normal, I’m told.

The second act? I will be tested for Myasthenia Gravis, an autoimmune disorder that affects muscles in the face, hands, legs, arms. So I’m not totally out of the autoimmune woods yet, but I don’t really anticipate this will come back positive. Other than the double vision, I have no other symptoms of this specifically. If the blood tests come back positive for the antibodies, however, that opens up a whole new can of worms. Tests, possible surgery, and medications that I don’t want. The good news is, if the tests show a tumor on the thymus gland, having it removed is curative for MG. Double-edged sword on that one, though, seeing as I’ve never had surgery in my fifty years. I guess I have to start somewhere. 

So what does it all mean? Right now, nothing. To borrow my mom’s cardiologist’s description, we’re marching in place. Testing will be ordered, but until then, there’s nothing to worry about. It’s incredibly difficult for me to give that away. I’m a worry wart by nature. I know whatever happens, God always has my back. Sometimes I’d do a lot better to remember that.

Sorry this is quick, but I thought I’d give an update on the goings-on down here in sunny west-central Florida. If I don’t get back here before the holiday approaches, I wish you all a very Merry Christmas and a happy, healthy and prosperous new year. 

Much love and gentle hugs!